tag:blogger.com,1999:blog-29965768.post2078502563390154937..comments2023-05-24T11:12:57.974-04:00Comments on Unexpected Journeys: Kerryhttp://www.blogger.com/profile/16351269886862492620noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-29965768.post-45837349390911511262007-10-29T12:12:00.000-04:002007-10-29T12:12:00.000-04:00My heart sank as I was reading your post. It's da...My heart sank as I was reading your post. It's days like that that really bring you down. The pictures is adorable and I do hope this equipment helps Brady...but it's so hard seeing your child "need" these things to get them going. Hang in there,<BR/>TaraTarahttps://www.blogger.com/profile/09243578449949369346noreply@blogger.comtag:blogger.com,1999:blog-29965768.post-87030636009079250982007-10-29T09:57:00.000-04:002007-10-29T09:57:00.000-04:00I freeze and grind my teeth every time Avery's the...I freeze and grind my teeth every time Avery's therapists recommend specialized equipment, or try to "adapt" her stuff. Her therpist secretly hate me because I can be so stubborn. My opinion only, and just an opinion, some things are only great in theory and do not always come in handy in real life. HOWEVER, for Brady I would get him a walker for sure! And a stroller sounds great. I use Avery's all the time, and could see using it for awhile. But I can relate sister!!!!<BR/>XOXO<BR/>AmyAmyhttps://www.blogger.com/profile/17516817466844602132noreply@blogger.comtag:blogger.com,1999:blog-29965768.post-46629630538019847582007-10-29T01:23:00.000-04:002007-10-29T01:23:00.000-04:00i hate 'those' moments. The ones that come out of ...i hate 'those' moments. The ones that come out of nowhere and smack you square in the head yelling "this isnt 'normal'!!! "<BR/><BR/>You know the theory, of course and in this case, these products are designed to help and they will. But it still hurts.<BR/>xxooKatiehttps://www.blogger.com/profile/08591859777209767308noreply@blogger.comtag:blogger.com,1999:blog-29965768.post-77812574774432673972007-10-28T16:19:00.000-04:002007-10-28T16:19:00.000-04:00I think that would have thrown me off first thing ...I think that would have thrown me off first thing in the morning too. <BR/><BR/>what a cute pic of Brady in the walker though!Michellehttps://www.blogger.com/profile/02441176684416139172noreply@blogger.comtag:blogger.com,1999:blog-29965768.post-27145975691813632572007-10-27T17:55:00.000-04:002007-10-27T17:55:00.000-04:00Oh goodness, I know exactly the feeling you felt. ...Oh goodness, I know exactly the feeling you felt. I think it comes when we are reminded (with what feels like a neon sign) that our kids are truly different and that "it wasn't supposed to be this way". It stinks. I don't think it will ever get easier but I do think as time passes and the rug is pulled out from underneath us...we are, with each passing year, a little quicker to stand back up. <BR/>xoxo<BR/>michelleMichellehttps://www.blogger.com/profile/07035821008526234671noreply@blogger.comtag:blogger.com,1999:blog-29965768.post-48301238896789841232007-10-27T14:35:00.000-04:002007-10-27T14:35:00.000-04:00Brady is so cute! As from what I have read he has...Brady is so cute! As from what I have read he has come so far, hang in there.Anonymoushttps://www.blogger.com/profile/02830265393110562847noreply@blogger.comtag:blogger.com,1999:blog-29965768.post-17062773331334549862007-10-27T09:47:00.000-04:002007-10-27T09:47:00.000-04:00I too have had that happen on too many occasion to...I too have had that happen on too many occasion to mention. I think it is hard to see your child as anything but the wonderful kid they are. You overlook what's "wrong" because that is who they are. I have had people ask me "why does Abi need DAFO"s she walks around just fine?" yes it is hard to put her in them but she does need them or they wouldn't put them on her. She also used a walker simialr to the one in the picture with Brady. It took her no time to get the hang of walking after using it. It is worth it but hard. Feeling for ya!!<BR/>NoelNoelhttps://www.blogger.com/profile/14277546803977737835noreply@blogger.comtag:blogger.com,1999:blog-29965768.post-11026783719649496212007-10-27T08:06:00.000-04:002007-10-27T08:06:00.000-04:00Kerry, this might be what he needs to really take ...Kerry, this might be what he needs to really take off. You may be surprised. Once he gets a taste of being upright... Ya never know..<BR/>ps: I know it is hard to think of your baby that way. Hang in there, he'll get it. Lot's of love, HeatherHeatherhttps://www.blogger.com/profile/10568642727069856850noreply@blogger.comtag:blogger.com,1999:blog-29965768.post-66031378302462890342007-10-27T07:33:00.000-04:002007-10-27T07:33:00.000-04:00I felt the punch in the gut right along with you. ...I felt the punch in the gut right along with you. Brady is going to surprise us all! Yhat i am sure about.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-29965768.post-34038899304027269372007-10-27T00:28:00.000-04:002007-10-27T00:28:00.000-04:00Hearing you, loud & clear, Kerry... somedays it's ...Hearing you, loud & clear, Kerry... somedays it's the smallest thing that pulls the rug out from under you... when you least expect it... <BR/><BR/>Rock on, Den MOM! :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-29965768.post-47542265295224612912007-10-26T19:17:00.000-04:002007-10-26T19:17:00.000-04:00While I was reading your post, I just had a little...While I was reading your post, I just had a little lightbulb moment. <BR/><BR/>I used to see a child using equipment, whether it be leg braces or a wheelchair, or a walker, and feel sad. Now I just see them as extremely wonderful tools. I don't feel sad anymore. That's all they really are. <BR/><BR/>I think Brady is ADORABLE in the photo. Looks like he is ready to take off!Nancyhttps://www.blogger.com/profile/15752344076797977728noreply@blogger.comtag:blogger.com,1999:blog-29965768.post-39895816352517500032007-10-26T18:15:00.000-04:002007-10-26T18:15:00.000-04:00Wow, that's hard. Those moments when you really fe...Wow, that's hard. Those moments when you really feel different from other people are so hard. And I think, for the PTs and OTs of this world, those magazines and pieces of equipment are more "business as usual" for them instead of them being able to understand the "AGH you want to put my child in what?" feeling. Hang in there and keep trying to stay focused on the accomplishments he's made, because he has come really far. We love ya, Brady!!camillehttps://www.blogger.com/profile/12493206160470634301noreply@blogger.comtag:blogger.com,1999:blog-29965768.post-26002398097069498112007-10-26T15:37:00.000-04:002007-10-26T15:37:00.000-04:00Those are how my bad days feel. Most days he is j...Those are how my bad days feel. Most days he is just Noah, sweet, loving, funny Noah. But on the bad days I do feel sorry for him and myself and remember that he isn't just like every kid his age. I said before I know all kids are different and for the most part I feel that way but on some occasions, and they don't last long, I am shook back to the reality that he isn't just different because of uniqueness, but because he has a syndrome. I don't think any of us could have dreamed we would be here when we were pregnant. No one ever thinks it will happen to them.Juliehttps://www.blogger.com/profile/00884113264489122221noreply@blogger.com