It's been a little insane over here (I am noticing how many times I start a post like that...). We started the new school year and with that all the other new things -- a new Sports season (soccer), a new Cub Scout year (Webelos 1), a new Programming year for me with the PTO (scheduling and finalizing programs for the school), a new CCD class, a new homework/play/bed schedule, etc.
And on top of that, we have all of Brady's annual visits coming up. Within two weeks, Brady and I (and Grandma) have made/will make five separate visits to Children's Hospital, plus his normal therapy appointments (which Teresa has graciously pointed out to me is seven hours a week), plus a weight check at his pediatrician's. So... if I haven't called you back -- you know I'm not screening your call!
Our first visit was to Nutrition, where we had to see a new Nutritionist since ours is still on maternity leave from March (she comes back in November). We did like her-- she added more Polycose to his food, suggested we get insurance to pay for the Polycose (doing that right now!) and suggested we use the food processor on our dinner and give it to Brady for his, adding more calories and giving him more texture. Only thing, is that Brady is in a "No Food" strike right now because his two-year-old molars are coming in -- Brady's teeth are always the one thing he gets early or on time! He is taking his bottle so I'm not worried about him losing weight, and I think one just punctured through the other day so we are probably almost done.
Last Thursday Brady had his echo -- we have been going every six months because his heart problems seemed to stop escalating. This was no different -- no changes since March! Yeah! We don't go back til next March now. The only pain we had that day was waiting for the doctor because he was called to an emergency. We ended up not leaving until rush-hour traffic was starting and we were sans Grandma this trip. Looong day -- but good results. :)
Friday we went to Genetics. The ever-witty Teresa summed up the visit nicely for me: "What have you been doing? That's great, keep it up. Bye!" We love our geneticist so this visit is always pretty painless. She did recommend for Brady to see a Neurologist, only because he hasn't yet, not for any specific reason. Also, she wants his hearing tested again since it hasn't been done since he was five months old. She was pleased with his abilities, happy he was seeing PT three times a week plus the other EI appointments, and thought he was extremely cute. :) She said she wanted to keep an eye on his growth because he was barely on the WS curves for both height and weight. She is also having the coordinator from the Williams Clinic at Children's contact me so we can get in on that, which would be fantastic. We would see all his doctors over a few days and hook up with other families.
Tomorrow we go to Orthopedics (his PT gave me a laundry list to go over with him) and then OT at the hospital for measurements for possible splints for his hands. Thursday we go to the Opthomologist, where Brady will probably get into big trouble for not wearing his glasses. Hopefully she will solve that problem for us!
We were able to hook up with Teresa and Shawn both Thursday and Friday while they were doing Clare's pre-op then surgery. Good to see them, but not for good reasons. Please send your prayers out to Clare for a speedy recovery. Check out her updates here: http://www.claresjourney.blogspot.com/