Unexpected Journeys

Monday, August 11, 2008

Here is a great post from Joanne, who happens to be Sawyer's grandmother (Sawyer is in the pictures from Sunday, August 10 post.) http://jossoapbox.blogspot.com/

When I heard about this movie, it looked hysterical and I was anxious to see it. I had no idea about the sub context in it. While I have never taken a stance about the word "retard" in my blog before, the points Joanne makes are right on.

4 comments:

Heather said...: Glad you are back! Beautiful picture up top! will comment more later! Busy catching up :) Heather; 7:20 AM
Tara said...: Hey Kerry!!! I love the picture at the top - beautiful. I'm going to go check out Sawyer's blog.
PS - the book I gave the school was "understanding williams syndrome".; 9:23 AM
Mrs. P. said...: Hi

I am so happy to hear the Brady is doing great!! - I love the picture at the beach (my favorite place). Say hi to Michael for me and give Brady a kiss - I miss you guys!! Hopefully I will see you soon.

Love

Mrs. P>; 12:34 PM
Joanne said...: Hello Kerry,
Glad you saw the post about "Tropic Thunder" on my blog! I really appreciate that you spread the word about the disturbing contents of this film. Like you, I thought it might be a fun movie to see - now my money will stay in my pocket.

The pictures of Sawyer with your Brady. Your son is so cute! He seems to have jumped on the fast track with his recent skills.

I know you are scared about upcoming surgical procedures. My son, Scott has had two heart caths and a mitral valve replacement. I have to say in all cases, he handled it much better than I did. It is terrifying to have your child wheeled away -looking so small and vunerable.

I will hold you and Brady in my prayers and pray the outcome is good for him! They can do such wonderful things now to make everything shiny and new!!

I will be watching for good news on your blog soon. Hopefully,he can be playing with Sawyer soon!

Joanne (in Tennessee); 8:37 PM

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What is Williams syndrome?

Williams syndrome is a rare genetic condition (estimated to occur in 1/7,500 births) which causes medical and developmental problems.

Williams syndrome is caused by a spontaneously occurring deletion of 20 genes on chromosome #7, including the gene that makes the protein elastin, which provides strength and elasticity to vessel walls. The heart and blood vessel abnormalities are caused by this lack of elastin. Most young children with Williams syndrome are described as having similar facial features. These features include a small upturned nose, wide mouth, full lips, small chin, and puffiness around the eyes. Blue and green-eyed children with Williams syndrome can have a prominent "starburst" or white lacy pattern on their iris.

The majority of individuals with Williams syndrome have some type of heart or blood vessel problem. Typically, there is narrowing in the aorta (producing supravalvular aortic stenosis SVAS), or narrowing in the pulmonary arteries. There is a broad range in the degree of narrowing, ranging from trivial to severe (requiring surgical correction of the defect).

Individuals with Williams syndrome have a very endearing personality. They have a unique strength in their expressive language skills, and are extremely polite. They are typically unafraid of strangers and show a greater interest in contact with adults than with their peers.

(adapted from the Williams Syndrome Association website)

Unexpected Journeys

Monday, August 11, 2008

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