Day One

It's been a long day. Not going to bed til 2ish, getting up at 4:45, a little catnap around 10... I am ready to drop. I am sitting on a bed at the Best Western next to Children's, hoping to get more sleep that if I was laying on the little bench behind Brady's twelve beeping machines. Completely zonked until tomorrow, the little boy doesn't even realize that I am gone, which is of course the only reason why I am here, and not there.

The day started pretty well - not too much traffic driving in, then Brady crashed pretty quickly on the sedative they gave him. By 7:45ish he was whisked off to be prepped. By 9:25 they had made their first incision. Not too long later he was on the bypass machine, then at 10:50 the surgeon was walking out to meet us. Things had gone very smoothly to repair Brady's supravalvular aortic stenosis. They also removed a flap that was over the coronary artery, which, apparently, is common with WS kids. And since they were hanging out around the heart anyway, they repaired his little VSD.

He's been pretty much plowed since then; in fact they decided a short time ago to wait to excabate him until tomorrow so he can continue to be sedated. The docs like their patients to be awake to be excabated, but then they would have sedated him again to rest and they didn't want to put him through that back and forth. Brady tends NOT just lay down and chill out, so I think it is a good plan.

So here I sit, with a borrowed laptop (Thanks, Lisa K!!) and a help figuring it out how to work it (Thanks Lisa R.!). I will be able to keep up with everyone over the next week while we are here. Thanks especially to Nanci for all the advice- I am using it all!! And once again, thanks to everyone for their prayers, gifts, Michael-sitting, and dinners... I know the BEST people!